Privacy and confidentiality

A funny cartoon of a research special operations team collecting data from a sleeping participant who went missing.

Chasing lost participants and data – Human Research Ethics commentary

Institutions should have guidance material for researchers that discusses the respectful and ethical way to follow up with research participants who have become lost and the loss of a source of data that was looking promising.  This commentary sheet reflects on the issues and the matters that should be covered.  This and other resources, including recordings of talks, discussion activities and downloadable templates are accessible to subscribers of AHRECS.VIP.  A subscription costs an institution AUD350 per year.  Email to discuss.

Talking about data sharing in research integrity professional development and resource material: A commentary on a Nature piece and reflecting on the epochs of ways of discussing data sharing – A Research Integrity and Human Research Ethics Commentary

This commentary by Dr Gary Allen reflects on how the ways we approach and talk about data sharing have changed.  It also suggests it’s time for another change.  It contains links to 13 useful reads.